17 February 2010

spreading the word

For all of you CF families out there, there is a fantastic new website called CysticLife. It works kinds of like Facebook, networking families and individuals with CF. It is a great community to go to for help, encouragement and general info. Check it out! You'll love it!

4 comments:

  1. Now that CF seems to be coming up more and more, I look for sites that have information and discussion boards. My sister passed away it will be 10 years ago this coming October and I miss her so much. Reading peoples stories just brings her back home, because some of what I hear are her exact words. Let't keep up the good and infromative site.
    Thank You.

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  2. I coach (soccer) a young boy, Nat Gallen, who is fighting CF. I used to be a professional soccer player and now do some pretty cool things in the "self-help" world. I decided to make a movie to help raise funds for the Cystic Fibrosis Foundation. The result is FIGHT-The Movie. It's a 2 hour inspirational movie sharing the stories of 11 everyday people who choose to FIGHT. My definition of FIGHT is:
    fight [fayht] v. To exert oneself continuously and vigorously toward a desired outcome; to steadily progress in the direction of a dream.

    ***For more information or to order a copy of FIGHT-The Movie, visit:
    www.iamreadytofight.com

    TO A CURE!
    Jerry Moyer
    jerry@iamreadytofight.com

    ReplyDelete
  3. Anonymous #1: I'm so sorry to hear about your sister. I'm glad that participating in CF communities and forums brings up fond memories of her.

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  4. Jerry: I'll be sure to check out your site!

    ReplyDelete

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